My little brother Timothy was diagnosed with Duchenne Muscular Dystrophy and lost his life at the age of 21. I've always wanted to do something to help fund raise for Muscular Dystrophy UK, the national charity which works for and supports affected individuals, their families and the professionals who care for them, but have never found the right vehicle - I'm not a marathon runner or a cake baker, but now I feel that I can finally do my bit to help through Daisy Works.
Duchenne MD is a genetic disease, meaning that it is caused by a fault in the genetic code throughout the cells in the individual's body. DMD is caused by a single base change in the DNA which codes for a protein which is essential for the development and maintenance of muscles. That's one typo in thousands & thousands of bases. One tiny mistake causes such devastation. Many cases of DMD are spontaneous mutations in the sufferers - in other words it has not been inherited - there is no mutation in the parental DNA and often not in siblings or other relatives. The very basis of evolution which brings us the wonders of the living world also brings us sadness like this disease.
MD UK is making huge progress in all areas - in funding research into treatments and cures, in helping sufferers, their families and the professionals who work with them. As with every area in scientific research, it's an expensive business & part of the charity's remit is to help fund research.
Daisy Works is committed to helping raising funds for MD UK. Please donate directly on my Just Giving page. We are very happy to get involved in MD UK events where our services might be useful - raffle prizes, decorations for events etc. Just get in touch.
Follow our progress in this blog and watch out for special sales and events from us in support of MD UK.